HOW RECOVERY FROM FIBRO WEBSITE GOT STARTED
Having fibromyalgia and SEID (short for stemic exertion intolerance disease formally chronic fatigue syndrome) since 1975 has helped me understand my illness much more than most doctors. In 1995 my doctors prescribed a wheelchair because of the fatigue and pain I was in. By January 1996 I was forced to quit working and my doctors felt it was best that I not even drive and I gave up my driver’s license. Over the next sixteen years my illness manifested in many different ways and I was diagnosed with over thirty five underlying medical conditions. I also suffered with cancer, a stroke and then three heart attacks. I had been bed bound for over ten years at this point, was on twenty nine (29) different prescriptions and had nursing six days a week. I couldn’t even get out of bed to use the bathroom by myself. In 2010 my doctors told me it was time to get my affairs in order. That is when I went looking for an alternative to what my doctors were currently doing.
I found a protocol called SHINE which was having lots of good results for others. I contacted over one hundred people who had posted on a website that they were using this protocol. They all told me what a difference it was having in their lives. My wife and I talked about this and decided to give it a try, what did we have to lose at this point? I want to a clinic that specialized in SHINE and the doctor said “Instead of covering up the symptoms, let’s find out what is causing them and work on the root cause.” They tested me and found out that my hormones were totally out of whack. Something that no doctor before had even looked at. Everything from my adrenal glands to my thyroid was not being treated or not being treated correctly. They started giving me IV therapy which speeded up my recovery. Introducing nutrients and vitamins directly into the blood stream gets them into the cells faster.
My recovery was amazing to say the least! In just two months I was driving again, in four months I was walking on my own again. In five months I was off all the pain meds and other drugs that cover up the problems I was having. I would never say that I am cured but I am so much better than I have been since this siege on my body in 1994.
How can we help others? I had contact with Dr. Jacob Teitelbaum MD who came up with the SHINE protocol. He created this protocol to help himself because he had chronic fatigue about the same time I started having problems. As we talked about how we could help people that have fibro/cfs we realized that many could not go to a specialty clinic because of the cost of the clinics and the travel that might be required. At this point we began talking about how I could train other people with fibro/cfs how to start their own recovery much like I had been through. I started this website along with a personal blog to help others. Then I started speaking to fibro/cfs groups about what I did to work on my recovery. I also coached many individuals about these concepts also. Several suggested I write a book teaching the concepts that I used in my recovery and how people with fibro/cfs could start their own recovery without all the expense of traveling to a specialty clinic. This led to the creation of my STEPS workbook. Why a workbook you ask? Because not only do you need information but you need a personalized plan of attack. Each of us has different underlying symptoms (which makes it hard for doctors to help us as a group). But if you get a personal treatment plan and can write it down then you can work your plan and see the progress that many others that I have coached have had.
We started traveling almost three years ago teaching free STEPS workshops using our workbook. We have traveled just over 100,000 miles teaching others how to get their own treatment plan. You can get the workbook in print that is mailed directly to you, or now as a pdf that you can print out for yourself. If you are interested in our STEPS workbook you can order it below.